Beyond the Horizon: The Changing Landscape of Rare Disease Treatments

Help celebrate Rare Disease Day this year! On Friday, February 28th, the National Organization for Rare Disorders (NORD) Center of Excellence and the Program for Precision Medicine in Health Care (PPMH) will be hosting a Symposium, “Beyond the Horizon: The Changing Landscape of Rare Disease Treatments.” During this symposium, speakers will address: 

• The past, present, and future of rare disease research and treatment at UNC 
• The patient and family experience with rare disease diagnosis and treatment 
• Rare disease community engagement and philanthropy at UNC 

The symposium will be from 2pm-5pm on Friday February 28 in MacNider 321. 

There are options for in-person and virtual attendance. Please RSVP here.

The speaker list includes: Jonathan Berg, MD, PhD; Muge Calikoglu, MD, MPH; Sam Young, PhD; Matthew Hirsch, PhD; Yael Shiloh-Malawsky, MD; Senyene Hunter, MD, PhD; Carlee Friar, BS; Patricia Sullivan; Eleanor Bolton; Karen Hogan, DNP, RN; & Mary Gard, MA 

The full agenda can be found on the website. 

If you have any questions, please email precisionmedicine@med.unc.edu.